Category: Laura’s Story\

It has been over a year since Laura underwent her 6th and (so far) last open heart surgery. On January 7th, 2017 Laura had her heart removed from her chest and a new, gifted heart, put in it's place. We celebrated her one year transplant anniversary with friends and family and it was a wonderful… Continue reading Laura’s story – Part 37 – illness and Biopsy results

Today is November 15th, 2017. It has now been more than a year since Laura's last cardiac arrest. On November 14th, 2016 A.J and I witnessed Laura's body go limp has her heart failed her. She got a few extra cuddles yesterday but there were no nerves - she is doing so well now. After… Continue reading Laura’s Story – Part 36 – How far we’ve come

Now that we had been home for a few months, we were really starting to get into a routine. A.J returned to work and Laura and I had our own thing going at home. It was nice to fall into a bit of a groove - even if that groove still included bi-weekly blood work… Continue reading Laura’s Story – Part 35 – biopsy

Shortly after Laura's dedication on Mother's Day, she came down with her first cold. We had been so careful with hand washing, hand sanitizer and just generally keeping her away from people but with a compromised immune system, it shouldn't have been a huge shock when she got sick. It seemed to come out of… Continue reading Laura’s Story – Part 34 – Illness

May 14th, 2017. Mother's Day. This mother's day was a bit more special than it would have been had Laura been born healthy. This day signified a new beginning for our little family - we were home, Laura was healthy and she was learning new things all the time. She was able to sit up… Continue reading Laura’s Story – Part 33 – Dedicated

Once we found a way to get some fluid into Laura, it was time to start trying her on solid food! We bought some baby cereal and tried a few different kinds until Laura fell in love with one called Mixed Grains and Fruit. We found that she would slurp up the cereal but then… Continue reading Laura’s Story – Part 31 – Fun and Frustration

Being home was amazing. The three of us were becoming a real family - we went for walks (if it was warm enough), we played, we read stories, we ate together. It was these small things that we didn't know if we would get to do. There were many times when we had to wonder… Continue reading Laura’s Story – Part 30 – The greatest hurdle

Now that we were home, it was time to come up with some sort of a routine. Here is what our days usually looked like: 07:45 A.J. and I would wake up and get Laura's meds ready for her 08:00 med time. I would pump and then we would go get Laura from her crib… Continue reading Laura’s Story – Part 29 – Our new routine

Being home was surreal. Laura had never been there and I hadn't been home since September 10th of the previous year. It was still decorated for fall even though it was the middle of winter and it looked eerily the same as when we left it almost 6 months before. We took Laura around the… Continue reading Laura’s Story – Part 28 – Home at last